A Baby from Florida who received only one week to live is thriving today, and would not have been possible without the generosity of the anonymous donor who covered her medical bills.
When Bill and Meg Longhenry welcomed their second child, Millie, in August 2023, they were told that they had no hope of survival due to a weird and severe congenital brain disorder called holoproscencephaly (HPE).
HPE affects approximately one in 10,000 living births, and most babies do not survive beyond the first week, according to statistics. Millie was born with the most serious form of the disease.
“We discovered that she has a strange brain badness in which part of her brain did not develop, and the other part did not develop correctly,” said Meg Longhenry in an interview in the camera with Fox News Digital.
“So there is no division between the two hemispheres and the medium is hollow.”
The doctors told the parents that “Millie should have a spontaneous abortion or a fetal death,” said his mother. “I should have died moments after birth.”
“They told us that about 95% of patients with this diagnosis do not survive conform to the first months … and any person who survives the adjustments that require a greater amount of medical care, such as feeding tubes and breathing tubes,” said Bill longhenry. “Usually, they have no brain function.”
After spending two months at the hospital, Millie was sent home in hospice care with four to six months to live, but the lengths were not ready to give up.
“God had something else in mind,” said Bill longhenry. “God had a different plan, and only God could make that decision.”
A friend recommended that Millie’s parents connect with Dr. Ir. Brandon Crawford, a functional neurologist in the Austin Neuroscion center, which specializes in the use of non -invasive techniques without drugs or surgery.
When MRI reviewing and examining Millie, Crawford said he saw “great potential.”
While much of his brain is missing, he said, the highest portion is “relatively intact and works well,” he told Fox News Digital.
“I begin to have the idea that this child is really trying: he is not in decline, he is really fighting to live his life in this world.”
Challenging the chances
Under the care of Crawford, Millie began a treatment plan that included laser light therapies, acoustic wave therapy that uses sound waves to stimulate natural healing processes and primitive reflex integration and Laby Babody.
Dr. Marcella Madera, a neurosurgeon who serves as a medical director of Neurosolts, also collaborates in the treatment of Millie to guarantee security and effectiveness.
“It is this combination of regenerative medicine, functional neurology of development and photobiomodulation that is causing and feeding its brain development and its creation of neuroplasticity,” Crawford told Fox News Digital in a Spare interview.
“For example, she can see clearly and responds to visual signals, but not she is not not most visual routes that are not most of those visual pathways developed in her brain,” he continued. “That means that his brain has wiring and remarking the ability to see, and that is the surprising part, that the brain can do it.”
Bill longhenry describes treatment as “combining physiotherapy with neuronal functions.”
Today, said Crawford, Millie is not only surviving, but through something that is very strange for this condition.
“She continues to grow and develops and is becoming stronger,” he said. “We are working to drag with her right now, that is unheard of for this. His attentive set continues to improve, only his ability to eat.”
Millie is also starting to vocalize, said Crawford, saying “Mom” and “Dad” and communicating with his older brother, Theo.
“She has a small brave personality, and it’s incredible,” he said. “Honestly, if you look at her and interact with her in person and then look at her magnetic resonance, you would not think she is the same child.”
Millie is smiling, laughing and responding to her name. She also understands people’s speech and is using sign language.
“Millie would not be here today, we keep the different things to help her brain, to help her again,” Meg Longhenry added.
Prayers answered
Last month, Millie’s family faced the possibility of canceling its intensive neurological therapy due to financial limitations.
Meg Longhenry had recently known to Crawford that they would have to cancel their next treatment due to the lack of funds, but he told him to enter anyway.
“I said, don’t worry about that, they just come. There is no way I am letting Millie take care of, we have gone too far.”
On the morning of March 27, when the Crawford team was about to perform another regenerative medicine procedure with Millie, they prayed for divine intervention, he told Fox News Digital.
“A couple of hours later, we received random phone call,” he said. “It was another patient who has been following Millie’s story, and she said:” I feel that I should donate something for the case of Millie, and my reception said, well, that would be incredible. “”
The donor offered to cover the total pending balance for the treatment of Millie, more than $ 47,000.
“It is simply impossible to understand that level of generosity of a stranger,” said Bill Longhenry.
“We have to follow this treatment, but it is not covered by insurance, so we are doing everything possible to work.”
Ultimately, the Longhenrys discovered who covered the medical exens: a previous patient or that of Dr. Crawford. They were able to call her and thank him for the donation.
While this anonymous gift erases a great financial obstacle, Millie’s trip is far from finishing, the family shared.
It will require monitoring therapy every four to six months, specialized home equipment and trips for continuous attention, which insurance does not cover.
“I think finance are always really scary for us … but there is no price that I can put in your life,” said Meg Longhery. “I will continually fight and do what I need to do so that I can have the best life I can.”
The family also depends largely on their faith, believing that Jesus worked through Dr. Crawford to help save Millie’s life, according to his mother.
“We serve a God so great that he is bigger than our greatest fears: He is the best doctor and aligns us with the place where we need to be and who we need to be,” he said.
“And it is very encouraging to see the growth that they told us repeatedly that we would like to see.”
For more information about Millie’s trip and progress, people can visit Moamuntoinsformillie.org or @MovingMountinsformillie on Instagram.
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